Lighting the Way: Stories of Strength During Epilepsy Awareness Month

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November is Epilepsy Awareness Month, a time dedicated to shining a light on a condition that affects nearly 3.4 million people in the United States. 

This month serves as an opportunity to raise awareness and celebrate the strength and perseverance of those impacted by epilepsy. Through advocacy campaigns, personal stories, and community events, Epilepsy Awareness Month aims to educate the public, reduce stigma, and promote understanding about this often misunderstood condition.

Epilepsy is a neurological disorder characterized by recurring seizures that can challenge individuals and families in unique ways. However, through resilience and education, those living with epilepsy and their loved ones find ways to thrive.

Andrea Tipton is mother to 25-year-old Evion, who was diagnosed with epilepsy at a young age.

“At first, I felt powerless,” Tipton admitted. “Watching Evion experience his first seizure was terrifying. But over time, I realized that understanding his condition was the most powerful thing I could do for him. Education gave us hope.”

Andrea has since become an advocate for families navigating epilepsy. She encourages other parents to seek information and build a support network.

“We’ve learned to identify Evion’s triggers—lack of sleep is a big one—and work closely with his doctors. He’s now on medication that has played a big role in his journey,” Tipton said. “It’s not perfect, but we’re grateful for every moment of stability.”

While Tipton speaks from the perspective of a devoted mother navigating her child’s condition, Adriana Goins offers a first-hand account of living with epilepsy. 

Goins, a 20-year-old college student, was diagnosed as a teenager, and despite the challenges, she refuses to let the condition define her.

“There were days when I felt like giving up,” Goins shared. “High school was tough. I missed classes, and some teachers and peers didn’t understand what I was going through. But epilepsy taught me to be my own advocate.”

Goins now speaks openly about her condition to raise awareness and break down stigmas.

“People often have misconceptions about epilepsy—they think it’s just seizures. But it’s so much more. It’s the anxiety of not knowing when the next one will come, the adjustments you have to make in your daily life,” Goins said. “Awareness helps people understand that we’re not defined by our condition; we’re living full lives despite it.”

Epilepsy Awareness Month aims to educate the public and reduce stigma. For families like the Tiptons and individuals like Adriana, awareness is a critical step toward creating a more inclusive society.

“Knowledge is empowering,” Tipton emphasized. “When people understand epilepsy, they can be part of the solution. Whether it’s through simple kindness or supporting research, every action makes a difference.”

Goins agreed, adding, “Awareness isn’t just about facts—it’s about empathy. It’s about seeing the person beyond the condition and standing with them.”

Epilepsy is a complex condition with many faces, but through stories like Andrea’s and Adriana’s, it becomes clear that no one has to face it alone. This November,  join hands to support those affected by epilepsy by spreading awareness, advocating for research, and fostering a community of understanding and compassion.